Showing posts with label disease. Show all posts
Showing posts with label disease. Show all posts

July 22, 2012

A balancing act

[This is my first journal entry (a reflective writing exercise) for my Health and Human Values class.]

Toward the close of today’s lecture session, Dr. M posed the following question: “How are we motivated by the joy of others to join in their joy, and by the suffering of others to do something to relieve it?”  (He went on to attribute such responses to the activity of mirror neurons in the brain.)  This question drove me to reflect on one aspect of medicine which I expect will challenge me in the near future, especially once I am permitted to interact with patients: the necessary balance between maintaining emotional distance from their pain, and allowing compassion and empathy to inform my caregiving.

A dear friend of mine recently commented to me, “S, you are no passive observer of life.”  Not only am I inclined to agree with him, but I am also convinced that this kind of fire will serve me well as a physician.  The passion itself deserves explanation, of course, as it is a manifold creature – it includes anger (both righteous and unrighteous, I admit) as well as compassion.  In the context of my fast-approaching entry into medical school, I often feel compelled to consider my capacities for all of these emotions, but I want to use this particular space now to focus on compassion.

I am, by nature, the kind of person who feels deeply, no matter what the emotion.  Naturally, this character trait has always rewarded me with substantial and fulfilling relationships in my life.  However, it also comes with an important limitation: its tendency to drive me into distress, and sometimes even incapacitation (at which point, of course, I always try to employ appropriate coping strategies).  Seeing another person’s pain occasionally causes me to wonder what kind of significant difference I, a single physician, will ever be able to make in this broken world.  It’s a paralyzing experience indeed, and one that hits hardest when I encounter the stories of patients who suffer from illnesses with which I have a personal connection.  (I have already had one such experience in class, and today was only the second day!)  So I expect that both as a medical student and as a physician, I would do well to constantly check myself – to ensure that I am never becoming too emotionally involved with my patients.  At this point, I am not sure about how best to conduct this kind of self-evaluation.  However, I expect that I will learn more than enough about this at medical school (if not formally, then at least experientially).

I am reminded now of something written by Ann Voskamp, a favorite blogger of mine: “Compassion isn’t merely a vague sense – but a feeling so strong that it causes you to bend: it shapes your body, your life, into a response…it’s birthed out of the Latin ‘pati’ and ‘cum’ and it means ‘to suffer with’.  Compassion chooses to suffer with the sick, to be kicked in the gut, to weep with the weak, to pray with the powerless, to cry with the castoffs.  Compassion is the condition of being fully with.”[i]  Indeed, there will come a day when another human being entrusts himself/herself to my professional care, and I will gladly accept that challenge, that person’s burden.  I want to be shaped into a person who, as well as “suffering with” her patients, has the ability and acumen to respond with a therapeutic touch, whatever that may mean (i.e. a drug, a referral, or even just a simple conversation).

That has always been my reason for pursuing medicine: I want to be with those who hurt, firstly so that we can be human together…and then, using all of the knowledge and experience I will accrue in the years to come, so that I can heal.  To use Voskamp’s phrasing, I want to bend.  But like any human response, bending involves complexities of which any future physician should be prepared to address on a personal level.  I want to bend, yes, but not to the point where I break and cannot serve.  I want to be motivated by suffering, yes, but not to the point where suffering is all I can see.  So it’s my hope, now, that the next chapter of my education will teach me how to find the balance I need.

[i] Voskamp, Ann.  “When Compassion becomes a Gold Rush.”  Web log post.  A Holy Experience.  N.P., 12 Nov. 2011.  12 Nov. 2011.  http://www.aholyexperience.com/2011/11/when-compassion-becomes-a-gold-rush/.

July 19, 2012

Captive

I should be working right now...

Instead, this disease holds me captive.  And my heart has never ached like this before.  I need to vent, and I'll do it here because I'm pretty sure no one's reading...which is just fine with me.  Plus, there's no one I can talk to about any of this except D and S and I'm terribly afraid of overburdening them.  What if I'm too much and they decide I'm not worth dealing with anymore?

It's hard to imagine that I could be happy - really, deeply happy - anytime before January.  And I don't even know what's going to happen in January...how that transition will happen.  I know that this time is supposed to provide healing, but it feels like punishment and I'm broken and alone and it hurts to breathe.  So I cry and let this disease control me.  I focus on the cramps because that's pain I can control.  On June 24th (which is when this new hell began), S called it an addiction.  I've only ever thought of it as a coping mechanism, or a control issue...but in a way, her redefinition made sense.  I don't feel able to live any other way.  Is that addiction?

I almost wish I could be angry with him, so that I wouldn't have to be sad...but I care too much about him to even consider such a thing.  Instead, I walk around campus and remember and remember and remember some more.  Everywhere I walk, a memory lies in wait to knock the breath out of me all over again.  B has her reminder in me, and I have my reminders all over this home away from home.  I guess that's fair (what a bitter thought)...but that doesn't make it hurt any less.

Two days ago, S called to see how I was doing.  Among some other well-intentioned and gentler things, she told me that this particular friendship is just not going to come back, and that it would be better (for me) to just acknowledge the truth in that.  She's not wrong; I understand her in my head (as opposed to understanding it in my heart).  It was just way more direct than I could handle.  She apologized, too, and I said, "It's fine; don't worry about it," out of politeness.  She's only known me for four months, after all.  How can I ask her not to be direct when that's the kind of person she is, and she's only known me for four months, and she's only trying to help?

But I ended up crying, alone, all night...it was the same as usual.  It was acrid and breathless and desperate.  It made me physically sick.  I woke with puffy eyes and a tightness over my temples, yet had to spend the day working in my lab and being cheery.  All I really wanted to do was go back to my room and turtle so I could sleep off the headache.  Pretending to be happy is exhausting.  Deceiving (most of) my friends makes me feel more alone than I should have to feel.  There are very few people that I want to be around right now, but if any one of them were, I might have some motivation to move.